Emil D. Kakkis

Biography

Emil Kakkis, M.D., Ph.D., is Founder, President and Chief Executive Officer of Ultragenyx Pharmaceuticals Inc., a biotechnology company developing therapeutics for rare diseases. Dr. Kakkis also founded the EveryLife Foundation for Rare Diseases (EFRD) to improve regulatory policy issues. The EFRD succeeded in getting legislation into FDASIA that could improve access to the accelerated approval pathway. Prior to founding Ultragenyx and EFRD, Dr. Kakkis joined BioMarin in 1998, where he guided the development and approval of two more treatments for rare disorders, MPS VI and PKU, and contributed to the initiation of seven other treatment programs for rare disorders, three of which are now in clinical development or approved. Dr. Kakkis is board certified in both Pediatrics and Medical Genetics, received his undergraduate

Research Interest

Medical Genetics